Bob....update please

ppaca wrote:Bob, received your email. How far is that appt from your house? I can stop by about 12.45 tomorrow maybe even a little earlier. I want to go over a few things with you.

2seaoat wrote:Nueroendicrine Tumor or NET for short.  The specific medical term for my tumor is aptypical carcinoid tumor.  A carcinoid tumor and NET tumors may be non cancerous and benign.  You may find that the tumor you have is NOT cancerous.  It was no fun to be told by local pathology that you were cancer free and then three days later they are calling you four or five times to schedule immediate surgery because you have "atypical" which is the aggressive cancerous strain which they did not recognize locally.   I pray your tumor will NOT be small cell lung cancer.   Early detection can beat small cell, but it is the nasty of lung cancers.  Mine is the slow but certain of lung cancers......people can live seven or eight years with mine.

When I did the surgery, I was told my five year survival rate on a resection of the lung was 90% if it was not atypical, and 69% if it was atypical.  If it had been small cell it would be 25%.  I have now lived over 7 years and believe that the numbers and stats are dynamic because my treatment of two monthly sando shots has changed the survival rates.  I think I can make it to Christmas, so do not freak out with the C word and lungs.   It is very encouraging they caught it so small, and that you are going to the best cancer center in the region.  Retired Leo had small cell lung cancer.....he had a tough battle.  I lost my Grandfather to small cell lung cancer, and my receptionist just two years ago who worried about me every day, all the while she had cancer in her lungs.....when they found it she had a two inch tumor, she was dead a year later.  You are in a great position to win your battle.  

Bob wrote:Seaoat's not gonna like this.  I'll be getting part of my lung removed,  and not at a cancer center,  but here locally at Sacred Heart.   And if that's not bad enough,  I'll be doing that without even a biopsy being done first.  lol

2seaoat wrote:A clear resection of a small tumor in the lung with clear margins can have as high as 90% five year survival.......a resection is standard procedure if they have not discovered anything else......that however requires the right scan.....knowing the difference is critical, but Bob your tumor may not even be cancerous.......but which lobe is the tumor located?

SheWrites wrote:If you feel comfortable with the doctor and procedure, that's all that matters Bob.  I think Sacred Heart has a great team of doctors and nurses.  If they did not feel it was in there scope they would send you to someone else.  You are in my prayers.

Bob wrote:

SheWrites wrote:If you feel comfortable with the doctor and procedure, that's all that matters Bob.  I think Sacred Heart has a great team of doctors and nurses.  If they did not feel it was in there scope they would send you to someone else.  You are in my prayers.

You're a sweetheart for telling me that, L.

SheWrites wrote:If you feel comfortable with the doctor and procedure, that's all that matters Bob.  I think Sacred Heart has a great team of doctors and nurses.  If they did not feel it was in there scope they would send you to someone else.  You are in my prayers.

Bob wrote:ppaca,

I called Evolution.  They said they don't actually supply the case managers and that Blue Cross does it.  They're contacting Blue Cross for me and told me I would receive a call about it today.