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Bob....update please

+12
Lisa12
Sal
Joanimaroni
Hallmarkgard
Markle
ZVUGKTUBM
RealLindaL
Hospital Bob
dumpcare
knothead
Vikingwoman
2seaoat
16 posters

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1Bob....update please Empty Bob....update please 2/4/2016, 6:52 pm

2seaoat



You dropped a bomb in our laps.....little follow up please.

2Bob....update please Empty Re: Bob....update please 2/4/2016, 7:22 pm

Vikingwoman



What's wrong w/ Bob?

3Bob....update please Empty Re: Bob....update please 2/4/2016, 7:54 pm

knothead

knothead

See Teo's thread . . . .

This is an edited post: after posting the above I went back to be sure where I read Bob's post regarding a health issue . . . . . I couldn't find it.

Bob, please fill us in . . . . .

4Bob....update please Empty Re: Bob....update please 2/4/2016, 8:16 pm

dumpcare



5Bob....update please Empty Re: Bob....update please 2/4/2016, 8:45 pm

Vikingwoman



Good grief!

6Bob....update please Empty Re: Bob....update please 2/4/2016, 10:38 pm

2seaoat



By the way it's been a trying day. That doctor appointment I went to this morning revealed the results of a CT scan. I learned the lymphoma I was diagnosed with two years ago has now metastisized into lung cancer.


I am very concerned and would hope you will share any more information which does not leave us hanging. Collectively we have had our emotions steamrolled with T, and I understand it may be too early for you to share, but that was a bomb you dropped on us, and further information would greatly be appreciated if you wish to share the same. In the past you have been very open in this regard.

7Bob....update please Empty Re: Bob....update please 2/5/2016, 11:14 am

Guest


Guest

I sent him a text last night... but he hasn't responded. We're all here for you Bob... take care.

8Bob....update please Empty Re: Bob....update please 2/5/2016, 11:29 am

2seaoat



It takes a few days after getting the C word to find your bearings. I only hope he goes to Moffitt in Tampa for a second opinion. When it comes to the C word, Florida has a remarkable facility which is held in the highest esteem by medical professionals. Get online and find a pulmonary doc and oncology team at Moffit and get in the car after you make an appointment. People all over the country come to Gulf Breeze on orthopedic issues.....they do not come there for Cancer or pulmonary issues. Please get a second opinion from a leading institution which Florida is blessed to have Moffitt. I have been there and they are great.

9Bob....update please Empty Re: Bob....update please 2/5/2016, 11:48 am

dumpcare



I had been in contact through emails quite a few times yesterday, he had something to do yesterday afternoon. I was going to stop by but he asked me to come Monday.

10Bob....update please Empty Re: Bob....update please 2/5/2016, 1:21 pm

Hospital Bob

Hospital Bob

Thanks to all for your concern.
My tumor is 8 by 11 mm in size.  I'm told if a tumor is larger than 10 mm in size,  I won't have to go through an open lung biopsy.  I can instead get a less invasive one, called a transbronchial lung biopsy,  which is done through the mouth and airways to the lung.
I have an appointment with the surgeon on Monday to see if my tumor is large enough for that method.  If not I'll have to have it done the invasive way.

The biopsy will determine the source of the tumor.  It could have metastisized from my Lymphoma cancer or from my Melanoma cancer or it could be independent of both.   
Once it's determined locally what kind of tumor it is,  I'm going to go to one of the cancer centers in the southeast for further diagnosis and treatment.  Either UAB (Birmingham),  M.D. Anderson (Houston),  Shands (Gainesville),  Mayo Clinic (Jacksonville),  Moffat (Tampa),  or Cancer Centers of America in Atlanta.  Which ones are in my insurance network will determine where I go.

11Bob....update please Empty Re: Bob....update please 2/5/2016, 1:46 pm

dumpcare



Bob wrote:Thanks to all for your concern.
My tumor is 8 by 11 mm in size.  I'm told if a tumor is larger than 10 mm in size,  I won't have to go through an open lung biopsy.  I can instead get a less invasive one, called a transbronchial lung biopsy,  which is done through the mouth and airways to the lung.
I have an appointment with the surgeon on Monday to see if my tumor is large enough for that method.  If not I'll have to have it done the invasive way.

The biopsy will determine the source of the tumor.  It could have metastisized from my Lymphoma cancer or from my Melanoma cancer or it could be independent of both.   
Once it's determined locally what kind of tumor it is,  I'm going to go to one of the cancer centers in the southeast for further diagnosis and treatment.  Either UAB (Birmingham),  M.D. Anderson (Houston),  Shands (Gainesville),  Mayo Clinic (Jacksonville),  Moffat (Tampa),  or Cancer Centers of America in Atlanta.  Which ones are in my insurance network will determine where I go.

Mayo Clinic is not in network to any medicare advantage plans Bob and below is a list of oncologists at Moffitt that are

https://providersearch.floridablue.com/providersearch/pub/index.htm?_ga=1.190351528.246707594.1454519415#results?planCode=BPRP&planName=BlueMedicare%20Regional%20PPO&categoryCode=02&categoryName=Specialist&originLatitude=0.4904040340353516&originLongitude=-1.4337810850448414&sortColumn=PROGRAM&sortType=ASCENDING&searchRange=50&address=33565&providerName=&gender=&inIpa=false&subCategoryCode=Z03&subCategoryName=Oncology&acceptingPatientsIndicator=&officeHours=&providerLanguage=&staffLanguage=&programsList=&end=25

12Bob....update please Empty Re: Bob....update please 2/5/2016, 2:02 pm

2seaoat



Bob, I am sorry to hear the news, but very excited to tell you that the flexible bronc for a biopsy is a simple procedure where you will probably not even be given a general. The only thing I did not like is they chipped my tooth on my first one. I just finished a non flexible bronc surgery Wed, where they attacked the tumors by debulking, freezing, radiating, and cauterizing to stop the bleeding. This is a little more involved because they put a rigid steel tube into your lung rather than the flexible tube.

I am very encouraged by the small size of your tumor which I pray will not be small cell lung cancer. Early detection and the possibility of resection may give you high 80% five year survival. The small cell is not as high and is a nasty lung cancer to deal with, but they are doing amazing things with the same. I am so happy you are going to a regional center. I am not a fan of cancer centers of America, but cannot say enough about Mayo and Moffitt. I wish I could get you to Northwestern, but the logistics are impossible. The ride from Pensacola to Moffitt was not that big of a deal for us. Keep us in the loop.

13Bob....update please Empty Re: Bob....update please 2/5/2016, 2:25 pm

knothead

knothead

Bob allow me to join others here in our collective personal concern regarding the revelation you shared. Advances in this area are mind numbing and it is my sincere hope that the prognosis is encouraging. I want you to take that trip you mentioned but not because you believe it's your last hurrah . . . . please keep us in the loop and accept our collective admiration for your strength to fight the fight.

14Bob....update please Empty Re: Bob....update please 2/5/2016, 7:11 pm

RealLindaL



knothead wrote:Bob allow me to join others here in our collective personal concern regarding the revelation you shared.  Advances in this area are mind numbing and it is my sincere hope that the prognosis is encouraging.  I want you to take that trip you mentioned but not because you believe it's your last hurrah . . . . please keep us in the loop and accept our collective admiration for your strength to fight the fight.

What knot said, and so very eloquently, Bob.  I can add no more, except to confess that I'm counting on you to beat this and be well for a very long time to come.   I believe we think similarly on many issues, and am hoping to get to know you better by participating on this forum more often -- so you'd darned well better be here!!  Smile

15Bob....update please Empty Re: Bob....update please 2/5/2016, 7:57 pm

ZVUGKTUBM

ZVUGKTUBM

Dittos on what Knothead and RealLindaL said, Bob.

http://www.best-electric-barbecue-grills.com

16Bob....update please Empty Re: Bob....update please 2/5/2016, 8:20 pm

Guest


Guest

We are fortunate to live in a time when so much is available and I pray your medical care will be exactly was is needed to keep you with us for a long time, Bob.

17Bob....update please Empty Re: Bob....update please 2/5/2016, 8:36 pm

Hospital Bob

Hospital Bob

Reading this is making me realize that cyberworld friends are not a facsimile.   Cyberworld friends are no different than any other friends.  No matter how we communicate with each other,  either in person or not,  we're always still the same human beings with the same feelings.
Thanks,  friends.

18Bob....update please Empty Re: Bob....update please 2/5/2016, 8:40 pm

Markle

Markle

Bob wrote:Thanks to all for your concern.
My tumor is 8 by 11 mm in size.  I'm told if a tumor is larger than 10 mm in size,  I won't have to go through an open lung biopsy.  I can instead get a less invasive one, called a transbronchial lung biopsy,  which is done through the mouth and airways to the lung.
I have an appointment with the surgeon on Monday to see if my tumor is large enough for that method.  If not I'll have to have it done the invasive way.

The biopsy will determine the source of the tumor.  It could have metastisized from my Lymphoma cancer or from my Melanoma cancer or it could be independent of both.   
Once it's determined locally what kind of tumor it is,  I'm going to go to one of the cancer centers in the southeast for further diagnosis and treatment.  Either UAB (Birmingham),  M.D. Anderson (Houston),  Shands (Gainesville),  Mayo Clinic (Jacksonville),  Moffat (Tampa),  or Cancer Centers of America in Atlanta.  Which ones are in my insurance network will determine where I go.

My thoughts and prayers go out to you and your loved ones for a complete recovery. It is sad to me that so many of us are being diagnosed with cancer. Peculiar to me too is that there are so many different varieties.

For what it is worth, over the past 7 years, three very close friends of mine have used the Moffat center in Tampa. One used it twice, once for throat cancer and after 5 years cancer free, she has lung cancer. Each had nothing but praise for that center. I've never been there, I don't have a clue. Personally I opted for treatment here in Tallahassee.

May God bless you my friend. Getting old sure ain't for sissies.

19Bob....update please Empty Re: Bob....update please 2/5/2016, 8:45 pm

2seaoat



Thanks, friends.


No thank you Bob. I never got to say that to T, and I keep hoping all of this week has just been a bad dream. This has been a very tough week in so many ways, but you will always be important to us. We all love giving you crap, and you love slinging it back, but I am so hopeful for your treatment. I am here spitting up blood never feeling better that competent docs went after my NET tumors in my lungs and they performed a miracle....breathing normal. You will be riding an elevator for a few weeks....sometimes going up, and sometimes going down, but the most important thing you are willing to travel out of area for a second opinion from specialist. It will be your best decision.

20Bob....update please Empty Re: Bob....update please 2/5/2016, 9:27 pm

Hallmarkgard



"But the most important thing you are willing to travel out of area for a second opinion from specialist. It will be your best decision." I can surmise that my wife is getting sub standard treatment here in Pensacola? Not every one is blessed with enough money or resources to travel. I guess we just fucking die due to our ignorance.

21Bob....update please Empty Re: Bob....update please 2/5/2016, 9:50 pm

2seaoat



People from all over the country travel to the Andrews center because it is the nation's best orthopedic folks, and sadly there is a quantum leap in treatment from local hospitals and regional centers. I had my lung lobe removed at a local hospital. The pulmonary doc in 35 years had only seen two NET cancer tumors. It is rare. The pulmonary doc who just finished the operation wed at Northwestern told me he has operated on 150 NET cancer tumors and he is only forty years old where my other pulmonary doc was 60 plus.

My local hospital FAILED to put me on Sandostatin shots immediately after getting pathology results from Mayo Clinic that I had the rare cancer. They failed to give me an Octreotide scan which would have clearly discovered that in 2008 I probably already had metastasis on the liver......they just did not have the experience or expertise, and as a result my life has been cut short. Sure they found it......Sure they gave 100%, but they simply lacked the knowledge. You cannot locally be good at everything. Yes, I understand that not everyone can travel to Tampa, but those folks helped me and knew EXACTLY what needed to be done and made a referral to Northwestern where they lead the nation in radio embolization surgery. If I had knee surgery, I would try to see a doc at Andrews.....If I had lung cancer, I would try to travel to Tampa......it is important to get an informed second opinion.

22Bob....update please Empty Re: Bob....update please 2/5/2016, 10:32 pm

dumpcare



Well out of all my clients (have been many) that have or had prostate cancer, most recommend a Dr Scott Tully in Birmingham or his associate's as being the best in the Southeast, I don't know. In fact one of my client's urologist that is located in PC recommended Dr Tully to him. There are other's in his practice in Birmingham damn near as good from what I hear.

I have had some tell me their urologist locally have torn them up, but I have one 80 year old that his local doc put him into remission from bladder cancer. I don't know if it's a shot in the dark, but I tend to believe the top 20 cancer hospitals which MD, Moffitt and NW may use different approaches and stay up with their chosen field.

Lung cancer clients have a mix, many go to Moffitt, some to MD Anderson in Houston and just a couple have had success with the MD docs at Sacred Heart. Not one of them have mentioned UAB to me. Mayo in Jacksonville I don't believe is in the top 20 for lung cancer from the list I saw. Cleveland Clinic in Southern Florida, I believe in Palm Beach is listed.

I do know most of them locally have one thing in common, they don't like you researching on the internet and then bringing it to them. Guess they are just too into their self's. When you tell them I read a research article from Harvard, UCLA, Sloan Kettering, etc, they always try and dispute it. Maybe they are just jealous, who knows.

23Bob....update please Empty Re: Bob....update please 2/5/2016, 11:00 pm

Joanimaroni

Joanimaroni

knothead wrote:Bob allow me to join others here in our collective personal concern regarding the revelation you shared.  Advances in this area are mind numbing and it is my sincere hope that the prognosis is encouraging.  I want you to take that trip you mentioned but not because you believe it's your last hurrah . . . . please keep us in the loop and accept our collective admiration for your strength to fight the fight.


Ditto...perfectly stated.

Moffitt and MD Anderson are the centers I have known most tof utilize.

24Bob....update please Empty Re: Bob....update please 2/6/2016, 12:12 am

ZVUGKTUBM

ZVUGKTUBM

Bob wrote:Reading this is making me realize that cyberworld friends are not a facsimile.   Cyberworld friends are no different than any other friends.  No matter how we communicate with each other,  either in person or not,  we're always still the same human beings with the same feelings.
Thanks,  friends.

This was really well said, Bob. We may fight and jostle over in the Politics Section, but we care about everyone who comes here.

I try to remember all of the folks I hear about here with medical issues in my prayers.

http://www.best-electric-barbecue-grills.com

25Bob....update please Empty Re: Bob....update please 2/6/2016, 11:33 am

Hallmarkgard



One thing that really pisses me off about Cancer is the constant 2nd guessing on the treatment path you are taking. I am sure people are trying to be helpful, but many times they are not. You have to do what you think is best and what is available to you. As a care taker I already have enough enough guilt and stress trying plot a course of action. It is all ways "Have you tired? What if? There is a place in (Blank) that can cure her" Have you tried? You should have went to,,," Very seldom do any of these well meaning people know the scope and full details of the issue that you are addressing.

Last April my wife was given 6 months to live. In addition to her Liver Cancer she had a large tumour blocking her rectum. By the grace of God and the good doctors at Sacred Heart, her tumour is gone and today she will drive herself to visit her sister across town. She is progressing better than anyone had predicted. Would she better better off if we had went somewhere else? Who know? I damn sure dont.

When your wife is lying a bed, very sick and barely clinging to life, your options are limited. You do what you have to do.

Dont be too quick to dismiss all your local options as quackery...

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