I am getting stronger and will probably start posting again next week, but without dealing with the pain levels I really cannot function with a clear head. So Northwestern is sending the prescription to the state of Illinois by fed ex which will give a time stamp when they got it. The State of Illinois has claimed they have not gotten the prescription in their terminal priority section. The nurse claims she mailed it, and she claims she emailed it. My wife checked with the state and they never received a thing. Monday the fed ex shall bring this 60 day delay in getting some pain relief to a focus as to who is incompetent.
Because the pain is growing, and the state of Illinois has failed to give approval to the PRRT trials at Northwestern after 9 months waiting, I need to buy some time. The surgeon after reviewing my scans believes I still have blood vessels which will allow a chemo embolization attack on the most aggressive endocrine tumor on my liver. The chemo embolization surgery is scheduled for Nov 13th, and should be an out patient four hour procedure. It should knock me on my asz for a little over a week, and optimistically could give me six months which may be time to get into the trials if the State can get their act together. In the meantime I must deal with the constipation issues using my prescribed opiates which I do not take because of insufferable disruptions and pain for a week after using an opiate. The tumors set up in the intestinal wall, and my cousin's husband who died from endocrine cancer actually had a camera he swallowed for a full digestive 60k image internal examination have the camera get stuck on a large endocrine tumor. They removed it, but Moffit Cancer center in Tampa simply did not have the expertise in radioembolization and did 2 procedures and he was dead.
My fear is that I may have developed blockage which is magnified by the opiates. I will be getting a colonoscopy between now and November 13th to make sure that the pain is not radiating from a tumor blocking my digestive system. The good news is that I am up and working. I actually meet with customers in my semi retirement business on Monday for the first time in almost a month, and I am sweating working on the bobcat......If I can get just a little stronger, I can start messing with people again.
Because the pain is growing, and the state of Illinois has failed to give approval to the PRRT trials at Northwestern after 9 months waiting, I need to buy some time. The surgeon after reviewing my scans believes I still have blood vessels which will allow a chemo embolization attack on the most aggressive endocrine tumor on my liver. The chemo embolization surgery is scheduled for Nov 13th, and should be an out patient four hour procedure. It should knock me on my asz for a little over a week, and optimistically could give me six months which may be time to get into the trials if the State can get their act together. In the meantime I must deal with the constipation issues using my prescribed opiates which I do not take because of insufferable disruptions and pain for a week after using an opiate. The tumors set up in the intestinal wall, and my cousin's husband who died from endocrine cancer actually had a camera he swallowed for a full digestive 60k image internal examination have the camera get stuck on a large endocrine tumor. They removed it, but Moffit Cancer center in Tampa simply did not have the expertise in radioembolization and did 2 procedures and he was dead.
My fear is that I may have developed blockage which is magnified by the opiates. I will be getting a colonoscopy between now and November 13th to make sure that the pain is not radiating from a tumor blocking my digestive system. The good news is that I am up and working. I actually meet with customers in my semi retirement business on Monday for the first time in almost a month, and I am sweating working on the bobcat......If I can get just a little stronger, I can start messing with people again.