I owe a big thank you to Dreams. She has been insistent that I get the pain under control, but the opiates constipate and cause cramping. So the hospice nurse was here and she agreed with Dreams that we may have to make up a cocktail of pain relievers and muscle relaxers. After the worst day since I have been ill on Wed., we got the cocktail and used it. Cramping was immediately reduced by fifty percent, liver pain was good, bone mets were better, but I spend all day trying to position myself off the bone met on my tailbone, but it can really get bad, but now I simply shift my tailbone to the side of the lazy boy, and the muscle relaxants get me comfortable. It has been three months of unbearable pain as my body has simply rotted away eighty pounds since I have been sick. This forum has been good for all of us. People actually giving advice which helps and all of you have given me so much help. I am sorry this story is such a downer, but I promised Bob I would ride this out to the end. Thank you to all. I am taking my daughter on Sat Jan 12 to downtown hotel next to northwestern. We will try to go to museums and restaurants now that we have the cart, but the most exciting thing is I am off the medical pot which was not cutting the pain, but as I increased the dosage with the opiates, I was in a blur....my typing became really really hard. I am not telling you I have more than sixty days, but if I can balance the pain, find meals which do not have the death gurgle mucus, and simply live three months, the PRRT will have maximized the kill rate on tumors. I think I am seeing some slight color difference from the orange oily death poops to traditional fecal matter.
However, the caveat is despite the pain being reduced and my head clearing out, I still am getting weaker. I got a little hope. Jan. 12th we do the sando, and I will have a real good idea at that time if I can stabalize the disease which will not give me much quality of life....wheelchair, no driving, and totalpressure on Mrs. Seaoat. I do not think she could see me in pain much longer. I try to hide the pain, but she will come in when I am sleeping and moaning with each breath..........so here we go...thanks to all of you who have helped my quality of life....I will forever be thankful for suggestions.