I had my lung surgery and feel like somebody took a baseball bat and gave me about five good swats to the chest and stomach. Not terrible pain, but the lips and tongue are again all screwed up from probably spilled radiation or the freezing agent used to debulk my lung tumors. I got my three days of Octreotide specialized scans and I will see if I am eligible for the PRRT trials which have started in about five US hospitals. Northwestern is one of the hospitals.
It involves three injections and and overnight over three months. I doubt Medicare will cover, and in Houston the procedure is costing 60k. However, the Europeans have been years ahead of American medicine and in Holland, Germany, and in Geneva they are doing the PRRT treatment for about 20k plus airfare and hotel. There is some talk if you qualify for the US trials the injection series will be free in the trials. My doctor ordered the scans which ended last friday and were a royal pain in the asz with three hour scans on each morning followed by two half hour scans. I sleep usually but 2.5 hours a day is a bit much. I got the procedures covered while I still had my private insurance and had met my deductible......after December 1, I will probably go into steep decline without the second shot. We will see, but I will play the cards dealt, and if the doctor says I qualify, I will consider a trip to Holland for treatment because I doubt I will last the three years it will take our wonderful slow system to get PRRT approval by the FDA.
All good in this journey.